….that’s the name of the dress that I made today in hopes of helping a precious 5-year-old named Katie. Just over a week ago Katie’s family found out their beautiful daughter, Katie Starr has Cone-Rod Dystrophy which is a degenerative retinal disease with no cure or treatment. This will cause Katie to lose her sight if a cure isn’t found.
I don’t know why things like this happen to precious children and their families….I feel like God has a lot of explaining to do one day….my list of questions just keeps getting longer for him. The questions are on hold though….and I am a “do-er”…..so I did the first thing that came to mind: make an extra special dress. 100% of net proceeds from the sale of this dress will go to Team Katie Starr’s fundraising efforts to fund hereditary retinal disease research.
Please consider helping in any way you can to find a cure for Katie and all others affected with this disease. Visit here to learn more about Katie and her family.
To get you even more excited about the auction, here are some recent photos by Monika McSweeney Photography of the asymmetric style:
And one last photo I got from Kristina of Imagine That Photography. I was taken aback today at the number of people that I have come to know that are affected by or know someone affected by degenerative eye disease and blindness. For example, I learned from Kristina that her mother was involved with Recording for the Blind and was even the editor of a cookbook that sold 9,000 copies with all proceeds going to the organization. It’s these little tidbits that I would never know or think to ask about!
I don’t often dedicate myself to one cause….because it allows me to spread awareness about the causes that are near and dear to the hearts of people I meet along my Lil Blue Boo journey 🙂
Might be a little slow this week. My sister arrived today for LPGA Q-School! So excited to have her here for two weeks!
Really beautiful photography and dresses. Wow, thanks for sharing the cause and info, it was eye opening.
It's funny that you post that italisized paragraph about God explaining why to us…last week we had an "open forum" in Church where we could stand up and ask the Pastor any burning questions we had. That's what I asked him. I said we were watching a family friend struggle and fight for her life as she passed away from bone cancer (last night actually) and that when is the suffering enough?
His answer was really the only one I needed to hear. It was "I don't know", and that's just it. Nobody knows the part of God's plan that we don't see with our own eyes, but I think the picture is always SO much larger than we imagined.
For example: LBB just got the word out about something that many of us have never heard of by using this beautiful sweet little family. Now why he chose THAT family, I don't know and that will be a great conversation for them when they get to where they're going.
(Wow that was deep for before lunchtime at my house)
My eight year old son is blind. I stopped asking why years ago. He is this way for a reason, I just don't know the reason yet.